If you have any questions or would like to get involved with BDAI, please contact us to learn more.
210 S. DesPlaines Street,
Chicago, IL 60661
I was introduced to the bleeding disorders community back in the early 90’s when I was developing a camp for families impacted by HIV. I was shocked to learn about how many people with hemophilia were infected by this horrible virus. I vowed to do what I could to help. I stay committed to this wonderful community offering my nearly 40 year background in not-for-profit management and fundraising to move our programs and services forward.
I joined this organization in 1991 - when it was known as the Hemophilia Foundation for Illinois. A life time later - I am still personally vested in this strong, amazing community. As Associate Director, I am proud to be involved in nearly every aspect of BDAI - including Camp Director of Camp Warren Jyrch. One of my greatest joys is being able to watch this community, both adults and children, grow and thrive with each new advancement in care and treatment. Can't wait for what comes next.
I became aware of BDAI when my first grandson was born 15 years ago and was diagnosed with Hemophilia A. Although the family was well aware of this disorder, BDAI was, and continues to be, a huge resource and comfort for us as we learn more and advocate for those with bleeding disorders. Today we have an informed and very active teen in our midst that manages the challenges that go along with hemophilia and lives a very productive and normal life.
I assumed my role as Financial Director when I sold my small business (Doc Prep, Inc.) several years ago. As sole proprietor of that company, I gained the business experience necessary to serve BDAI well with fiscal responsibility while also championing the important mission of our organization.
Hi! I am so excited to be the new Development Coordinator at BDAI. Born and raised in the Chicago area, I received my BA in history from Kalamazoo College in Michigan where I spent 5 months studying abroad in Copenhagen, Denmark and a master’s in written communication from National Louis University in Chicago. Before joining BDAI, I interned in marketing and development at the Lyric Opera and at Marwen, a nonprofit art school. I have also worked as a massage therapist, bartender, legal clerk, and as a Walt Disney World attraction’s hostess, and look forward to bringing my eclectic experience to the BDAI team. In my spare time, I enjoy creative writing, acting, live theater, the Chicago Blackhawks, Chicago White Sox, Fantasy Football, traveling, and spending time with my new husband—I’m a newlywed. I am so excited to join the BDAI team and look forward to getting to know the community.
Even though my wife Martha and I were raising two boys with hemophilia, we were not aware that BDAI existed to support families with bleeding disorders, like ours. Thankfully, this all changed in 2013! Having now experienced the summer camps, the galas, the advocacy trips, golf and walk events (and more!), I feel privileged to have seen first hand the commitment and passion from the staff, the board, our partners and the entire BDAI community to support individuals and families. I'm very excited about the opportunity to help build on decades of outstanding support to those impacted by bleeding disorders in Illinois.
Board Vice President
Project Manager - Cook County Sheriff’s Office of Mental Health Policy and Advocacy
As a member of a family affected by Hemophilia, I have spent my life concerned about the health and welfare of those diagnosed with bleeding disorders. I learned at a very young age, that when a rare medical condition affects an individual, providing education, advocacy and a sense of community is crucial. My goal as a board member is to support BDAI in these pursuits. As the third member of my family to serve on the board of directors, I am proud to carry on this family tradition and invest my time and resources in this wonderful community. As an employee of the Cook County Sheriff’s Office, I advocate for the rights of all persons in my care and I am passionate about helping and healing the overlooked and most venerable among us. I have committed my life to clinical work and continuing education in the field of psychology and the treatment of clients with mental health, substance abuse, and offender behaviors. In addition to BDAI, I have served on several event planning committees to support individuals diagnosed with cancer, and I annually fundraise for the MS Society and the Chicago Police Memorial Foundation.
It is my distinct honor to serve as Treasurer for this amazing organization that supports families affected by bleeding disorders such as Hemophilia and von Willebrand disease. I am passionate about serving my community any way that I can. In the past, I have worked at a number of financial firms, as well as non-profit organizations offering financial education, tax preparation assistance, and job readiness classes.Now I hope to educate others about our very important cause and to establish new support for our organization. Please feel free to contact me any time at email@example.com.
Business Analyst, Red Chalk Group
With the majority of my non-profit experience being on the staff side for music and youth recreation programs, I first encountered the BDAI organization while vetting through the non-profit board applications in hope of gaining more organizational experience. As a member with relatively little exposure to bleeding disorder education, I would place myself parallel in terms of knowledge to families new to the BDAI community and hope to contextualize my unfamiliarity towards any insight to the board. I can be reached at firstname.lastname@example.org.
IIT Institute of Design
Margo Schwartz-Newton is honored and thrilled to be on the board of BDAI, where she looks forward to serving the bleeding disorders community—families and individuals who have generously helped her family learn how to navigate life with a bleeding disorder. Her goal is to reach families not currently in the BDAI community and help them learn about the plethora of resources available.
After completing a degree in sociology, Margo pursued studies in piano performance and earned a master’s degree in collaborative piano from the Cleveland Institute of Music. She is the pianist for Kol Zimrah Jewish Community Singers and Congregation BJBE as well as a freelance pianist and coach. Former artistic administrator with The Chicago Chamber Musicians, her current day job at IIT Institute of Design supports her musical habits.
Margo thoroughly enjoys the company of her extraordinarily supportive husband, Joel, and playing and singing with her ridiculously sweet little boy, Oliver.
Masters in Education, Columbia College - Chicago, IL
Nichelle recently completed her Masters in Education and is currently a stay at home mother in Oak Park with her husband and 2 year old son. Nichelle is embarking on a Social Justice Movement on race and diversity in her community. As a daughter to a father with Severe Hemophilia A and now a son, she's always known that she would be a part of the bleeding disorders community. Her goal is to be sure that new and existing families have current information regarding bleeding disorders and to be an advocate for new families during their bleeding disorders journey. As an educator and advocate for social justice, she is honored to be able to support the community and use her skills where they are most needed.
Technical Resource, PPTG | Honeywell LLC - Chicago, IL
Mike and Ramona are twenty five year residents of Brookfield, where they are raising their two boys Patrick and Matthew. Patrick attends Western Illinois University and Matthew is a Junior at RB. Mike has worked 34 years at UOP/Honeywell as a petro-chemical research technical resource. He has experience working with a variety of people from operation personnel to the VP of Research. Mike has been a team leader for production and safety teams in his position. Mike has eight years of experience as a village trustee as well. Mike, as trustee, has been the liaison for the Department of Public Works, Finance, Playground and Recreation, Planning, Zoning Board of Appeals, Special Events, and Administration.
As a BDAI community member, Mike has been an active participant in education programs. Mike enjoys advocating for the Bleeding Disorders Alliance IL community and has attended several of our legislative drives down to speak with our state legislators.
My name is Nyzera Fleming and I am a new member of BDAI board. I was introduced by a colleague, Marianne Kelly. She along with her family is a part of the BDAI community and have served on the board. Marianne was the first person to introduce me tothe background of bleeding disorders. She is why I became interested, along with pursuing a new career in social work. I was astudent athlete up to finishing undergrad at Missouri State University in Criminal Justice. I am currently attending Loyola University School of Social Work program, while working as an Executive Assistant at the Cook County Department of Corrections (Sheriff’s Office), in the Office of Mental Health Policy and Advocacy and interning at McGaw, YMCA in their Youth Services Department.
I believe our bleeding disorders bring certain blessings and strengths along with its struggles. One of those gifts is the supportive bleeding disorder community and our chapters, through which I learned at an early age the importance of education and advocating for oneself. When I moved to Chicago for law school, I was immediately embraced by the Illinois bleeding disorder community and I am excited to give back as a Board Member of BDAI.
In addition to being previously involved with the National Hemophilia Foundation and the Hemophilia Foundation of Michigan, I have dedicated my career to public interest law. I have sought to serve the legal needs of the underrepresented, first at the Domestic Violence Legal Clinic and currently at the Public Interest Law Initiative. In my professional life, I am privileged to work to inspire young adults to engage in public service. As a Board Member for BDAI, I am committed to helping ensure BDAI continues to be a resource for individuals and families through advocacy, education, and emotional and financial support.
As an individual with severe Hemophilia A, I am honored and excited to join the board of BDAI. Growing up in rural Pennsylvania, my family knew little about Hemophilia and had little access to a support network. That experience underlies my motivation to ensure that every family impacted by bleeding disorders is aware of, and can easily access, our community and all of the resources available to them.
I am passionate about empowering persons with all kinds of disabilities, including bleeding disorders, to become their own advocates, to reframe conversation with a focus on our shared value and achievement, and to find support in this remarkable community.
I am currently a project manager at McMaster-Carr; an MBA Candidate at the University of Chicago Booth School of Business; and a Board Member of Lime Connect, a global not-for-profit that's rebranding disability through achievement. Please feel free to contact me at email@example.com.
I joined the bleeding disorder community when my younger brother was born about 12 years ago. I am so happy to be a part of this special community and joining the board is one of my ways to give back. I am currently earning my master's degree in social work with a specialization in health. Seeing new families and continuing support for the current families the same way my family has been impacted has truly brought me happiness. I hope to bring my personal and social work experiences to families as a board member now. I previously worked at BDAI as a program assistant and have been very involved in Camp Warren Jyrch since 2005. I hope to create goals in outreach, advocacy, and education towards independence for those affected with bleeding disorders.
Our family was introduced to the incredible bleeding disorders community in 2004, when our 8-month-old son Charlie was diagnosed with severe Hemophilia A. The HTC team that delivered the news set the stage for our journey by saying, “This is the best diagnosis of all the possibilities. We know you don’t know anything about this, but we will help you. You will be fine.” And they were right! The education and support we have received from all segments of the community has been astounding and the experience has given us the skills and confidence to be better able to handle all the other challenges life brings. I want to do my part to make sure other families have the same opportunities.
My professional experience covers the fields of banking and finance, public education and non-profits. I was lucky to serve on the board of the Texas Central Hemophilia Association from 2005 – 2010 and worked for the chapter thru 2012. I have also been very involved in an international organization supporting educational opportunities for women.