Upcoming Events

2018 Statewide Family Education Weekend

April 21 - 22

Northfield Inn Suites
3280 Northfield Dr., Springfield, IL 62702

Looking towards the future, this year we will focus our attention on the latest news hitting the shelves in the bleeding disorders community with the theme “Preparing for the Ever-Changing World of Bleeding Disorders”. We have planned a full array of programs and presentations to arm you and your family with quality information, as well as a special event for Saturday night which will give everyone the chance to reflect, remember, and celebrate the bleeding disorders community as well as commemorate World Hemophilia Day. We will be hosting some of the best educators and speakers in the state, and all breakout sessions aim to provide you with the necessary information to continue receiving top of the line treatment and care.

Be on the look out for invites and registration forms soon! If you would like to attend, but are not on our mailing list, please contact Tessa McConnell at TMcConnell@bdai.org or call 312-427-1495.

Invite » Proposed Agenda » Registration Form »

Advocacy Days

April 22 - 23

Northfield Inn & Suites
3280 Northfield Dr.
Springfield, IL 62702

Advocacy Days will be on Sunday, April 22nd and Monday, April 23rd. You DO NOT need to attend Statewide to come to Advocacy Day. The first part of training will begin Sunday at 5pm followed by dinner. Attendees should arrive at Northfield Inn & Suites in Springfield, IL by 3pm on Sunday. We will have activities planned on Sunday for those coming to Statewide and staying for Advocacy Day. Training will continue on Monday morning starting at 10am. We will then head to the capitol for legislative visits starting at 1pm and depart Springfield by 4pm.

Please RSVP to Tessa McConnell at TMcConnell@bdai.org or call 312-427-1495.

Agenda »

Hispanic Bleeding Alliance

May 11: 6:00PM - 8:00PM

Chez Moi
2100 N Halstead Street
Chicago, IL 60614

Este programa se basa en el HOLA Habla de "Mi factor mi cuerpo". Esta presentación proporciona una inmersión más profunda sobre cómo funcionan los factores en el proceso de coagulación de la sangre y cómo el tratamiento factor reemplaza al factor VIII o factor IX que falta en este proceso. Además, se discutirá el tema de cómo los factores ofrecen opciones para el tratamiento individualizado.

This program builds upon the HELLO Talk of “My Factor My Body.”  This presentation provides a deeper dive on how factors work in the blood clotting process and how factor treatment replaces missing factor VIII or factor IX within this process.  Also, the topic of how factor offers options for individualized treatment will be discussed.

RSVP » Flyer »

"Don't Be Scared, Be Prepared"

May 19: 11:30AM - 2:00PM

Aurelio’s Pizza
1455 W Lake St.
Addison, IL 60101

This session identifies the types of incidents that could happen in your local area and gives practical, easy to implement tips for being ready for anything. We will meet at Aurelio’s Pizza at 11:30am then head next door for an hour of laser tag starting at 1pm!

DUE TO LIMITED SPACE, THIS EVENT IS RESTRICTED FOR CHILDREN AGES 7-15 WITH A BLEEDING DISORDER AND ONE OR BOTH OF THEIR PARENTS.

Program with be hosted in English and Spanish. Event in partnership with HFA.

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Esta sesión identifica los tipos de incidentes que podrían ocurrir en su área local y brinda consejos prácticos y fáciles de implementar para estar preparado para cualquier cosa. Nos encontraremos en Aurelio's Pizza a las 11:30 am y luego nos dirigiremos a la puerta de al lado por una hora de etiquetas láser comenzando a la 1pm.

DEBIDO AL ESPACIO LIMITADO, ESTE EVENTO SE RESTRINGE PARA NIÑOS DE 7 A 15 AÑOS CON UN TRASTORNO DE HEMORRAGIA Y UNO O AMBOS PADRES.

El programa se realizará en inglés y español. Evento en asociación con HFA.

RSVP's SE REQUIEREN para este evento.

RSVP » Flyer »

Blood Sisterhood: Hitting a Home Run at Your Clinic Visit

June 13: 5:45PM - 10:00PM

Guaranteed Rate Field
333 West 35th Street, Suite 221, Chicago, IL 60616

This session presents tried and true tips to maximize your comprehensive clinic visit. We will meet at 5:45pm in Suite 221 at Guaranteed Rate Field. After the presentation, we will enjoy food and drinks while watching the Chicago White Sox take on the Cleveland Indians from our box office seats above 1st base!

The group is open to any women 18+ that is in our bleeding disorders community. Space is limited for this event so RSVP today!

Event in partnership with HFA.

RSVP » Flyer »

2018 Calendar of Events

June 14 - 31

Calendar »


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