Giving Tuesday

November 27, 2018. How will you give?

Newly Diagnosed?

Were you or a family member just diagnosed with a bleeding disorder?

We can help! We can provide information on bleeding disorders, medical services, Hemophilia treatment centers and Hemotologists, medical products and treatments. We can also connect you with other families and persons with bleeding disorders.

Get in touch »


About BDAI

The Bleeding Disorders Alliance Illinois (BDAI) supports families affected by inherited bleeding disorders such as Hemophilia and von Willebrand disease by providing its members with the unbiased medical information and resources that allow them to live a healthy and active lifestyle. This neutral information is especially important for families seeking answers and support soon after the initial diagnosis.

BDAI also fosters a welcoming community for families to meet, interact and share information and advice. Through education and support, BDAI helps its members advocate on their own behalf with public and private insurance providers, medical services and government agencies, while representing the bleeding community in the world at large.

Next Event All Events »

Octapharma Presents NUWIQ*

November 29: 6:30PM - 9:30PM

Dave and Buster’s
1155 N Swift Rd, Addison, IL 60101

NUWIQ is a recombinant FVIII product that is produced in human cells. Join us for an interactive education experience to discuss how NUWIQ works as a treatment option. Presenters will discuss this product and how it could affect your treatment of Hemophilia A.

*BDAI is extending an opportunity to pharmaceutical companies to engage consumers with branded and/or product specific educational information and materials through the Education Partnership Program. BDAI is sharing this as information only. The decision as to what to do with the information is the responsibility of the individual recipient. Recipients are advised to check with their personal physicians before making any changes.

Flyer » RSVP »

News

Amazon Smile

October 29 through Nov 2, AmazonSmile is donating 5% (ten times the usual amount) to Bleeding Disorders Alliance Illinois when you shop at smile.amazon.com/ch/36-2390156. Are you an Amazon shopper? Did you know that as you shop on Amazon, you can support Bleeding Disorders Alliance Illinois with each Amazon purchase? All you have to do is log on to https://smile.amazon.com/ with your regular Amazon account and select the nonprofit you wish to support. With each purchase, Amazon donates a percentage directly to that nonprofit. Sign up to support BDAI!

Amazon Smile »

2019 Open Enrollment

On Thursday, November 1, open enrollment begins for health insurance plans. Open enrollment is the one time each year that you can modify, change, or re-enroll in your insurance coverage. It is important that you take the time to look at the plans available to you. Please visit HealthCare.gov for more information on choosing the plan right for you.

HeathCare.gov »

National Youth Leadership Institute

Applications for the National Youth Leadership Institute (NYLI) at the National Hemophilia Foundation (NHF) are now open. NYLI is a 3-year program that provides youth (18-24 years old) in the bleeding disorders community with leadership opportunities to encourage personal growth, effect change, and positively influence others. This is a fantastic opportunity for young adults in the bleeding disorders community to gain skills in public speaking, facilitation, advocacy, and the ins-and-outs of non-profits – as well as specific training in professional development. Applications are due October 31st. For more information and to apply, visit:

National Youth Leadership Institute »

Unique paid opportunity! Rare Patient Voice

Unique paid opportunity!
Rare Patient Voice connects patients and caregivers to surveys and research studies and pays you for your time! For just signing up, you will receive a $5 gift card and BDAI.ORG will receive a $5 donation for each qualified person who signs up and types “ BDAI " in the "How did you hear about Rare Patient Voice?" field.

If you would like to sign up, click on the link below:

Rare Patient Voice »

SponsorsAll Sponsors »

BDAI Partner Council

We wish to thank our leading contributors by providing a direct link to their web sites by clicking on the logos above.

BDAI does not endorse any specific product or service, and cannot be responsible for the website content of links to sites other than the bdai.org.

----------------------------------------------

BDAI would like to thank the Hemophilia Alliance Foundation for providing the grant to make our new website possible.


Advertisment

If you are interested in advertising on BDAI's website please call 312-427-1495