April 22nd - April 23rd in Naperville, IL
Statewide is just around the corner! This is your time to meet, greet, and learn with others in the bleeding disorders community! This year we have an exciting keynote giving by Patrick James Lynch, which discusses the theme "Obstacles, Opportunities, and Challenges." We will also be commemorating World Hemophilia Day during dinner on Saturday Evening. APPLICATIONS DUE FRIDAY, MARCH 28TH!
Were you or a family member just diagnosed with a bleeding disorder?
We can help! We can provide information on bleeding disorders, medical services, Hemophilia treatment centers and Hemotologists, medical products and treatments. We can also connect you with other families and persons with bleeding disorders.
The Bleeding Disorders Alliance Illinois (BDAI) supports families affected by inherited bleeding disorders such as Hemophilia and von Willebrand disease by providing its members with the unbiased medical information and resources that allow them to live a healthy and active lifestyle. This neutral information is especially important for families seeking answers and support soon after the initial diagnosis.
BDAI also fosters a welcoming community for families to meet, interact and share information and advice. Through education and support, BDAI helps its members advocate on their own behalf with public and private insurance providers, medical services and government agencies, while representing the bleeding community in the world at large.
NHF is hosting online video meet ups for men ages 18-30 with an inhibitor. They are the 2nd Wednesday of every month. If you are interested in joining the meet up go to the following link for more information.HeMOJI Meet Up »
NHF is conducting a survey that will help them better support our community members who are 50 years old or older in their changing needs. For more information and a link to the survey see below. Two iPads will be raffled off to participants of the survey.More Information » Survey Link »
NHF has just come out with their advice for navigating this latest Open Enrollment Period. Click on the link below if you are looking for some guidance in navigating your health insurance options for 2017.Insurance Plan Changes »
BDAI is always striving to provide the community with the best resources for helping people manage their or their loved ones bleeding disorders. We have recently added links to two important resources to our website. Under the "Types of Bleeding Disorders" page we now have a link to WFH's eLearning Modules website that covers every single type of bleeding disorder in depth, as well as the effects of inhibitors. And under "Community Support" we have added a new page on NHF's Steps for Living program which helps families manage all the social interactions, medical issues, and life events that are impacted by having a bleeding disorder at all ages. These resources can also be found on the links below.WFH eLearning Modules » NHF Steps for Living »
We wish to thank our leading contributors by providing a direct link to their web sites by clicking on the logos above.
BDAI does not endorse any specific product or service, and cannot be responsible for the website content of links to sites other than the bdai.org.
BDAI would like to thank the Hemophilia Alliance Foundation for providing the grant to make our new website possible.