Save the date! Our 21st annual golf benefit--Driving fore Hemophilia--will be Monday, June 18, 2018 at Silver Lake Country Club in Orland Park, IL.
Were you or a family member just diagnosed with a bleeding disorder?
We can help! We can provide information on bleeding disorders, medical services, Hemophilia treatment centers and Hemotologists, medical products and treatments. We can also connect you with other families and persons with bleeding disorders.
The Bleeding Disorders Alliance Illinois (BDAI) supports families affected by inherited bleeding disorders such as Hemophilia and von Willebrand disease by providing its members with the unbiased medical information and resources that allow them to live a healthy and active lifestyle. This neutral information is especially important for families seeking answers and support soon after the initial diagnosis.
BDAI also fosters a welcoming community for families to meet, interact and share information and advice. Through education and support, BDAI helps its members advocate on their own behalf with public and private insurance providers, medical services and government agencies, while representing the bleeding community in the world at large.
BDAI is committed to providing quality camping experiences to children with hereditary bleeding disorders. We work year-round to raise funds and solicit donations from our Camp Partners and the community. However, camp costs an average of $1,000 per camper. We do ask that our families help us meet a portion of the cost for this program by covering a portion of the total cost. The cost per camper is $250/camper.
The Colburn-Keenan Foundation is a charitable organization dedicated to improving the health and well being of individuals and families living with chronic illnesses, with priority placed on those living with bleeding disorders. The Foundation offers a campership program to help families cover the costs of sending their child(ren) to camp.
We're asking for your help this year by applying for these camperships. In doing so you will help to ensure our camp's future and its longevity for future generations of children to enjoy. For more information for the Camperships – including the application – click the links below.Campership Application » The Colburn-Keenan Foundatio »
Our 2018 golf outing--Driving fore Hemophilia--will take place on Monday, June 18, 2018 at a brand new course, Silver Lake Country Club, a beautiful historic golf course and site of the 1958 USGA National Public Links Tournament. The course features 45 incredible holes of golf! Be on the look out for more details to come.
Are you an Amazon shopper? Did you know that as you shop on Amazon, you can support Bleeding Disorders Alliance Illinois with each Amazon purchase? All you have to do is log on to https://smile.amazon.com/ with your regular Amazon account and select the nonprofit you wish to support. With each purchase, Amazon donates 0.5% directly to that nonprofit. Sign up to support BDAI!Amazon Smile »
Join us for our 7th annual weekend of education, support, and fun for those affected by FVII deficiency and their families.
Begins: Friday, April 6th, 2018
Ends: Sunday, April 8th, 2018
Newport News, VA
Pre-Registration - Opens 2/1/18
Pre-registration opens February 1, 2018 at 9a (EST). First preference is always given to families who have yet to attend the Factor 7 Retreat. Even if you cannot attend, please pre-register! Pre-registration metrics are important to overall data reporting for continued funding. As always, our goal is to enroll as many families to this program as possible and your patience is appreciated.
We have extended the schedule to include lunch on Sunday! Topics will include: Bleeding tendencies, men, women and teen breakouts, movement and wellness, self-infusion, civil rights/504 plan, and the psychosocial aspect of living with a chronic medical condition. At your request, we are planning for some hands-on learning and trying to build in a little more informal social time.
We wish to thank our leading contributors by providing a direct link to their web sites by clicking on the logos above.
BDAI does not endorse any specific product or service, and cannot be responsible for the website content of links to sites other than the bdai.org.
BDAI would like to thank the Hemophilia Alliance Foundation for providing the grant to make our new website possible.