Were you or a family member just diagnosed with a bleeding disorder?
We can help! We can provide information on bleeding disorders, medical services, Hemophilia treatment centers and Hemotologists, medical products and treatments. We can also connect you with other families and persons with bleeding disorders.
The Bleeding Disorders Alliance Illinois (BDAI) supports families affected by inherited bleeding disorders such as Hemophilia and von Willebrand disease by providing its members with the unbiased medical information and resources that allow them to live a healthy and active lifestyle. This neutral information is especially important for families seeking answers and support soon after the initial diagnosis.
BDAI also fosters a welcoming community for families to meet, interact and share information and advice. Through education and support, BDAI helps its members advocate on their own behalf with public and private insurance providers, medical services and government agencies, while representing the bleeding community in the world at large.
If you have hemophilia, should you be tested for an inhibitor?
Yes! According to new guidelines recently released from the National Hemophilia Foundation's (NHF's) Medical and Scientific Advisory Council (MASAC), if you have hemophilia (an inherited bleeding disorder in which the blood does not clot properly) you should be tested for inhibitors at least once every year. Read below to learn more about testing and minimizing the risk for inhibitors.
There is a new treatment available to the bleeding disorders community. The U.S. Food and Drug Administration approved Adynovate, Antihemophilic Factor (Recombinant), PEGylated for use in adults and adolescents, aged 12 years and older, who have Hemophilia A. Read more about this product below.Full Article »
If you use Amazon, consider supporting BDAI while you shop, its easy! Instead of logging into amazon.com, simply go to smile.amazon.com instead and choose the Bleeding Disorders Alliance Illinois as the charity you wish to support. Then, when you shop Amazon will donate a portion of your purchase to support BDAI at no additional cost to you. Spread the word!Amazon Smile »
Hemophilia Treatment Centers are a great resource for the bleeding disorders community. Check out this NHF video on the many reasons why these treatment centers are so important!Video »
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