Camp Applications Now Available

Applications for this years Camp Warren Jyrch are now available! Please go to our camp page to download yours! We look forward to see you at Camp!

Newly Diagnosed?

Were you or a family member just diagnosed with a bleeding disorder?

We can help! We can provide information on bleeding disorders, medical services, Hemophilia treatment centers and Hemotologists, medical products and treatments. We can also connect you with other families and persons with bleeding disorders.

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About BDAI

The Bleeding Disorders Alliance Illinois (BDAI) supports families affected by inherited bleeding disorders such as Hemophilia and von Willebrand disease by providing its members with the unbiased medical information and resources that allow them to live a healthy and active lifestyle. This neutral information is especially important for families seeking answers and support soon after the initial diagnosis.

BDAI also fosters a welcoming community for families to meet, interact and share information and advice. Through education and support, BDAI helps its members advocate on their own behalf with public and private insurance providers, medical services and government agencies, while representing the bleeding community in the world at large.

Next Event All Events »

Hispanic Bleeding Disorder Alliance

February 23: 6:00PM - 8:00PM

BDAI Office
210 S DesPlaines St.
Chicago, IL 60661

Daniel Contreras, compartirá información sobre la nueva tecnología llamada realidad virtual. Cenaremos y compartiremos una tarde casual en la compañía de nuevas y sus conocidas amistades. Los Jóvenes son más que bienvenidos, queremos crear más oportunidades de liderazgo para ellos. Vengas con ideas de temas educacionales o actividades para el futuro, pues queremos que ustedes decidan los temas educacionales para en año.
Para inscribirse: Por favor, llámenos al 312-427-1495 Por correo electrónico: TMcConnell@bdai.org
¡Esta es su reunión, su participación es solo para su y el beneficio de su familia!

This event will give everyone a chance to talk to old friends and new! We will welcome our Board President, Daniel Contreras, who will lead a discussion on virtual reality videos. How cool! Food and beverages will be provided in a fun, casual space while enjoying each other’s company. We welcome young and old to attend this event and encourage you to share some topic ideas that you would like to see featured at one of our future meetings.

RSVP » Flyer »

News

Save the Date

Lights, Camera…Gala! SAVE THE DATE! BDAI’s 29th annual spring gala –“Night of 20 Thousand Stars”—will be on April 14 this year at a brand new location, The Itasca Country Club! We’re rolling out the red carpet for this year’s Hollywood Glam theme to celebrate the star power of bleeding disorders community and honor the 20,000 people who have bleeding disorders in the United States. This glamorous evening will feature an hors d’oeuvres/cocktail reception, dinner, silent & live auctions, raffles, music, dancing and more! Official invites will be sent out shortly. Anyone interested in being a sponsor of this event or taking advantage of our special pricing for becoming a Table Captain of a table for 10 guests – please contact Lily Schwartz at 312.427.1495 or lschwartz@bdai.org. As always, donated prizes are most welcome. We are always looking for new and different items to help raise money. This important fundraising event generates vital dollars to help BDAI provide our advocacy, awareness, education, and consumer services so that children and adults with bleeding disorders can live better lives. We encourage you to dress for the theme. So come red carpet ready for some “reel” fun! Can’t wait to see you there!


CHES Factor Retreat

Join us for our 7th annual weekend of education, support, and fun for those affected by FVII deficiency and their families.

Begins: Friday, April 6th, 2018
Ends: Sunday, April 8th, 2018

Location:
Newport News, VA

Pre-Registration - Opens 2/1/18

Pre-registration opens February 1, 2018 at 9a (EST). First preference is always given to families who have yet to attend the Factor 7 Retreat. Even if you cannot attend, please pre-register! Pre-registration metrics are important to overall data reporting for continued funding. As always, our goal is to enroll as many families to this program as possible and your patience is appreciated.

Schedule:
We have extended the schedule to include lunch on Sunday! Topics will include: Bleeding tendencies, men, women and teen breakouts, movement and wellness, self-infusion, civil rights/504 plan, and the psychosocial aspect of living with a chronic medical condition. At your request, we are planning for some hands-on learning and trying to build in a little more informal social time.


Support BDAI While Shopping!

If you use Amazon, consider supporting BDAI while you shop, its easy! Instead of logging into amazon.com, simply go to smile.amazon.com instead and choose the Bleeding Disorders Alliance Illinois as the charity you wish to support. Then, when you shop Amazon will donate a portion of your purchase to support BDAI at no additional cost to you. Spread the word!

Amazon Smile »

HFA Teach Immersion Program

HFA is hosting two TEACH Immersions, including one led in English October 21st-24th, 2017 and one led in Spanish, November 4th-7th, 2017. TEACH will offer 24 men, women, moms, and dads from the bleeding disorders community, for three days of educational programming and advocacy training in Washington, DC. This training is designed to educate participants about the history of bleeding disorders and advocacy efforts, the legislative process, current policies affecting the bleeding disorders community, and tools to be a better advocate. If you want to learn more or apply, click the link below.

Apply Here »

SponsorsAll Sponsors »

BDAI Partner Council

We wish to thank our leading contributors by providing a direct link to their web sites by clicking on the logos above.

BDAI does not endorse any specific product or service, and cannot be responsible for the website content of links to sites other than the bdai.org.

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BDAI would like to thank the Hemophilia Alliance Foundation for providing the grant to make our new website possible.


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