BDAI invites you to help us crack to the code at our 27th Annual Gala! Follow the clues to unlock the vault and take home a part of the loot. This will be an evening of fun and mystery with a dinner, auction, raffle, and more. Find more details below and get your tickets now to be a part of the fun!
Were you or a family member just diagnosed with a bleeding disorder?
We can help! We can provide information on bleeding disorders, medical services, Hemophilia treatment centers and Hemotologists, medical products and treatments. We can also connect you with other families and persons with bleeding disorders.
The Bleeding Disorders Alliance Illinois (BDAI) supports families affected by inherited bleeding disorders such as Hemophilia and von Willebrand disease by providing its members with the unbiased medical information and resources that allow them to live a healthy and active lifestyle. This neutral information is especially important for families seeking answers and support soon after the initial diagnosis.
BDAI also fosters a welcoming community for families to meet, interact and share information and advice. Through education and support, BDAI helps its members advocate on their own behalf with public and private insurance providers, medical services and government agencies, while representing the bleeding community in the world at large.
Registration for CHES (Comprehensive Health Education Services) Inhibitor Family Camp is now open! This camp is open to children between the ages of 6-19 with an inhibitor and their families. Check out the flyers below for more information.Flyer » Brochure »
NHF is pleased to offer Connections for Learning Grants for those who want to attend its 68th Annual Meeting in Orlando, FL from July 21-23, 2016. This grant provides an educational opportunity for families to attend this meeting and get to know other families coping with bleeding disorders. Click on the links below to learn more and apply.Learn More » Travel Grant »
If you have hemophilia, should you be tested for an inhibitor?
Yes! According to new guidelines recently released from the National Hemophilia Foundation's (NHF's) Medical and Scientific Advisory Council (MASAC), if you have hemophilia (an inherited bleeding disorder in which the blood does not clot properly) you should be tested for inhibitors at least once every year. Read below to learn more about testing and minimizing the risk for inhibitors.
There is a new treatment available to the bleeding disorders community. The U.S. Food and Drug Administration approved Adynovate, Antihemophilic Factor (Recombinant), PEGylated for use in adults and adolescents, aged 12 years and older, who have Hemophilia A. Read more about this product below.Full Article »
We wish to thank our leading contributors by providing a direct link to their web sites by clicking on the logos above.
BDAI does not endorse any specific product or service, and cannot be responsible for the website content of links to sites other than the bdai.org.
BDAI would like to thank the Hemophilia Alliance Foundation for providing the grant to make our new website possible.