vWD Awareness
von Willebrand Disease is a common disorder occurring in 1% of the US population. It often goes under diagnosed and untreated though because symptoms can be mild or seem like the ‘normal’. Some symptoms include frequent or excessive nose and mouth bleeds, heavy menstrual periods, easy bruising, and bleeding during dental and medical procedures. It can often lead to anemia and more severe complications or injuries while playing sports, having invasive procedures and during childbirth.
To learn more about vWD watch the PSA below and visit ThinkVWD.com
National Hemophilia Foundation and Takeda Partner with Alex Borstein to Raise Awareness of von Willebrand Disease A new series of public service announcement...
How you can help raise awareness!
BDAI in conjunction with The National Hemophilia Foundation, Takeda, and Alex Bornstein is launching a campaign to raise awareness for von Willebrand Disease.
‘What is vWD’ - Video Challenge
To demonstrate the lack of understanding from people outside of the bleeding disorders community and frustration that patients with von Willebrand disease experience when explaining it to them, we will ask individuals to come up with a silly series of words to fit the acronym vWD that is not von Willebrand disease. After saying the silly acronym we ask you to reveal the actual meaning of vWD and share one fact about it. Including the link to ThinkVWD.com, the hashtags #ThinkvWD & #BDAIChallenge and encouragement for your friends to take the challenge as well.
Here is an example video:
The video can be as creative or simple as you want.
You can have as many people as you want in the video, but we ask that each person in the video share it to their social media as well. BDAI also asks that you include the hashtags #ThinkvWD AND #BDAIChallenge, a link to ThinkVWD.com, and one fact about vWD.
Facts include:
Von Willebrand disease (VWD) is the most common inherited bleeding disorder
Von Willebrand disease (VWD) is found in up to 1% of the world’s population
Von Willebrand disease (VWD) occurs in both men and women
Currently there is no cure for VWD. It is a lifelong disorder, but treatments are available
Symptoms of von Willebrand disease vary greatly from person to person, regardless of type, and may be overlooked.