Summer Camp
CAMP IS COMING! Join our info session May 6th to learn more!
BDAI is pleased to announce our partnership with Hemophilia Foundation of Michigan to provide camp for our Illinois youth community members.
Check out HFM's camp flyer here.
Where is Camp?
Camp Bold Eagle C/O Pioneer Trails
1421 East Fruitvale Road
Holton, MI 49425
When is Camp?
Camp Bold Eagle
Session 1: (Ages 6-9) July 13-17, 2025
Session 2: (Ages 10-12) July 19-25, 2025
Teen Camp: (Ages 13-17) June 29-July 5, 2025
Please visit their website for more information https://hfmich.org/our-camps-bold-eagle/
Don't forget to check out their other teen camps too! https://hfmich.org/camp/
With the exception of Family Camp, HFM welcomes children with bleeding disorders in Illinois to attend Camp Bold Eagle! Thank you HFM!
Join BDAI and HFM for an info session for camp. You do not need to preregister.
May 6
7:00 PM
Microsoft Teams
cena y educación
Join BDAI as we partner with Novo Nordisk for a dinner and education. This evening is presented in Spanish.
Únase a BDAI en nuestra colaboración con Novo Nordisk para una cena y formación. Esta velada se presenta en español.
Ruby Connection- a women’s virtual group
Bleeding Disorders Alliance Illinois has partnered with Hemophilia Foundation of Michigan (HFM) to bring the Ruby Connection program to Illinois. Adult women in the bleeding disorders community will have the opportunity to come together for online social experiences that include an educational speaker or activity while connecting with other women in the community. The group is open to women affected by a bleeding disorder or involved in the bleeding disorder community.
Register to join Genny Moore & Mayra Cantu on Tuesday, August 5th at 7pm CT for BDAI’s 1st virtual info session. The Ruby Connection Program provides a space for women affected by bleeding disorders or involved in the bleeding disorders community to connect, learn, and socialize.
Through HFM's generous support, a grant has been provided to reimburse meals (up to $30) for attendees who RSVP at least two weeks in advance, actively participate, and have their cameras on during the session.
Hispanic Heritage Celebration
¡RESERVA LA FECHA!
13 de septiembre de 2025, 5:30 pm
Reunir a la comunidad hispana BDAI para participar en educación y celebración en honor a las contribuciones y la influencia de los hispanos y latinoamericanos en la comunidad de trastornos hemorrágicos de Illinois.
Save the date for Hispanic Heritage Celebration, bringing the BDAI Hispanic community together to engage in education and celebration in honor of the contributions and influence of Hispanic and Latino Americans in the Illinois bleeding disorders community!
Rise Together- Virtual Teen Advocacy Retreat
Learn to advocate and be the voice for your bleeding disorder from the comfort of your own house.
Join BDAI and HFM teens (ages 13-18) with other powerful advocates as we embark on how to share your stories with your representatives, what every day advocacy looks like, mixed in with lots of fun.
The retreat kicks off with a box sent your way with goodies, and a door dash gift card for lunch. Following the retreat, be on the lookout for a cash stipend for attending!
*Spots are limited! Register TODAY!
Dinner and Education with Sanofi
Join BDAI with an evening sponsored by Sanofi with dinner and a branded education discussion to learn about their product Qfitlia.
cena y educación
This educational dinner with Cynthis Chavez, presenting in Spanish, with Sanofi will be discussing rebalancing Hemophilia A and B therapy with subcutaneous injections.
BDAI BASH- Beers, BBQ, and Bingo
Grab your friends for a fun night out raising funds and awareness for BDAI. Enjoy some appetizers, a couple drinks, and a round of bingo with your ticket! Additional bingo cards available for purchase throughout the evening. There will be awesome baskets put together to be raffled off, as well as fun bingo prizes!
There will be additional food and beverages for purchase, as well as non-alcoholic options available.
This event will sell out, please get your tickets early for the fun!
cena y educación
Únase a nosotros para hablar sobre cómo estar preparado para una emergencia de hemofilia.
Entendiendo Sus Opciones de Seguro Médico (Understanding Your Health Insurance Options)
Entendiendo Sus Opciones de Seguro (Comprensión de sus opciones de seguro médico)
Sabado 3 de mayo de 2025
5:30pm: registración
600pm: cena
Patrocinado por Genentech.
"Entendiendo Sus Opciones de Seguro Médico" (Understanding Your Health Insurance Options)
Saturday, May 3, 2025
5:30pm check in
6:00pm dinner
Sponsored by Genentech.
Hemophilia Advancements and discussion
Join us to discuss advancements in hemophilia over a dinner at Maggiano’s Little Italy in Schaumburg.
World Hemophilia Day Celebration
Celebrate World Hemophilia Day with your bleeding disorders community at the Ivy Room with beaded bracelet making, selfie stations and DIY photo frames. We can’t wait to see you and celebrate the bond that comes with being a part of the bleeding disorder family.
Batter Up for Better Health
CLS Behring and Optum Infusion Pharmacy are generously sponsoring an evening in Wrigleyville! We’ll learn about living a healthy and active lifestyle then watch the Chicago Cubs take on the Texas Rangers in an indoor/outdoor rooftop suite with food and drink service as well as TVs to watch the at Wrigley Field. Once registration opens, you’ll want to act fast - seating is limited! Ages 10 and up only, please.
Grandes Objetivos, Pequeños Pasos
Grandes Objetivos, Pequeños Pasos
Metas grandees, pasos pequeños en esta sesión interactiva, identificara sus metas y aprenderá como hacerlas realidad, incluyendo la identificación de las habilidades que necesitara y como desarrollarías. Como crear su kit de herramientas para la defensa de derechos. Obtenga las herramientas que necesita para defender sus derechos con éxito..
Presentatado por Sanofi
Viernes 21 de marzo de 2025
6:30 pm
Beatrix
272 Oakbrook Center
Oakbrook, Illinois 60523
Life with Hemophilia
Big Grove Tavern
1 E. Main Street, Champaign, IL 61820.
The evening includes dinner. More details on registration page.
Sponsored by Optum
Hill Day in Springfield
Monday, March 10, 6:30pm
Dinner and training
Wyndham Springfield City Centre
700 E Adams St.
Springfield, IL 62701
A block of rooms has been reserved through Gateway Chapter. The rate is $109 with parking available until February 17, but we are asking for an extension. Rooms are the cost of the community member.
Tuesday, March 11
Hill Day
Appointments will be made for you with your representative. Please make sure we have your current address!
Register below on Gateway Hemophilia’s website.
BDAI and Novo Nordisk: Alhemo - A presentation for patients
Join Novo Nordisk’s, Michael Norwood, for dinner and an educational presentation on their newest product, Alhemo® (concizumab-mtci). Alhemo is the first and only prefilled, subcutaneous pen for people who have hemophilia A or B with Inhibitors. Alhemo is used for routine prophylaxis to prevent or reduce the frequency of bleeding episodes in adults and children 12 years of age and older.
Enjoy dinner at City Works in Schaumburg near Woodfield Mall, next to the Hyatt hotel, with easy access to and from I-90/I-290.
Thursday, March 6, 6pm-8pm
City Works
1850 East Golf Road
Schaumburg IL 60173
Hello Talk: My Factor My Body
Únete a BDAI y Takeda en la presentación de Hello Talk: Mi Factor Mi Cuerpo en Tuscany en Taylor a las 6:00 pm
También tendremos una sesión de elefante blanco. Si desea participar, traiga un pequeño regalo valorado en $10.00 al evento y prepárese para divertirse.
Verifique las fechas de vencimiento de cualquier dulce o regalo comestible.
Esta presentación será en español. Todos son bienvenidos.
Join BDAI with Takeda as they present the Hello Talk: My Factor My Body at Tuscany on Taylor at 6:00 pm.
We will also have a white elephant session. If you would like to participate, please bring a small gift valued at $10.00 to the event and get ready for some fun.
If your gift is edible, please check expiration dates.
This presentation will be in Spanish. All are welcome to attend.
Please RSVP by December 6, 2024.
Winterfest and Community Education Event
Join us from 10:00 AM - 2:00 PM for some winter fun, education, and enjoying time with our bleeding disorder family. Please register below.
Thank you to our sponsors below for their support in bringing Winterfest to the community.
HFA's Rural Needs Summit (virtual)
HFA's first-ever summit geared entirely toward the needs and treatment of rural community members will feature major stakeholders, patient organizations, and community members speaking on issues related to barriers to care for rural community members. Click here to register.
Community Connections Statewide Conference: The Journey of a Lifetime
Join us for an enriching family education weekend, a time dedicated to learning, bonding, and community building for all ages. This weekend offers a variety of programs, provided in both English and Spanish, designed to engage every member of your family in meaningful and enjoyable ways.
Click here to register with a form to mail in
Click here to register online
Hello Talk: Beyond Bleeding Disorders: Recipe for a Healthy Lifestyle
Email Lily (lschwartz@bdai.org) by October 20 to register!!
A healthy lifestyle can really move you! Use healthy eating habits to fuel your body and improve your emotional well-being. Get tips on how to fuel smart when you are out or on the run.
Hispanic Heritage Celebration
Registrate aqui!
Unise con Takeda en conjunto con Bleeding Disorders Alliance Illinois, y Hispanic Bleeding Disorders Alliance para nuestra Celebración de Herencia Hispaña!
Vamos a pasar una tarde muy divertida con sesión educativa, música, comida, rifa, piñata, y otras actividades.
Habra un premio para la persona que venga mejor vestida/o con ropa de su país nativo hispano.
Todos son bien venidos a este evento. Sesión educativa será en español.
____
Join Takeda in conjunction with Bleeding Disorders Alliance Illinois, and Hispanic Bleeding Disorders Alliance for our Celebration of Hispanic Heritage!
We are going to a fun evening with an educational session, music, food, raffle, piñata, and other activities.
There will be a prize for the person who comes best dressed in clothes from their native Hispanic country.
Everyone is welcome to this event. Educational event will be in Spanish.
Register here!
BDAI, BCDI, and BDH: Educational dinner (free)
“Optimizing Outcomes beyond Treatment: The value of comprehensive care for individuals with bleeding disorders”
In this interactive presentation, Dr. Tarantino will explain the importance of expert care at comprehensive care clinics, which have a log-term track record of providing timely diagnosis, treatment plans, and optimal outcomes for persons with bleeding disorders.
Fall Family Fun
Reconnect with your inner child while picking apples with your BDAI family! We'll enjoy a shared meal while learning more of our wellness journey. The day will be packed with exciting activities like visiting the petting zoo, playing mini golf, and zooming down the zip lines. We can't wait to kick off this fall season together!
Many thanks our sponsors for making this event possible!
Novo Nordisk - presenter and sponsor
Hemabiologics - sponsor
Soleo - sponsor
NBDF’s National Bleeding Disorders Conference
The National Bleeding Disorders Foundation (formally NHF)’s 76th Annual Bleeding Disorders Conference (BDC) will take place September 12-14, 2024, in Atlanta! We are excited to bring the bleeding disorders community together again for three incredible days of educational sessions, valuable networking opportunities, and exciting exhibits at the Georgia World Congress Center.
BDAI and Bayer present Infusion Best Practices (Spanish)
Se anima a los asistentes a participar de forma activa en la charla.
Los asistentes pueden aprender unos de otros y enfocarse en métodos de resolución de problemas ante los desafíos cotidianos derivados de la vida con hemofilia.
No dude en hacer llegar esta invitación a cualquier persona que crea que podría beneficiarse de esta experiencia.
Para para cualquier pregunta o información adicional, comuníquese con Armando Serrano.
Registrate aqui!
Annual Meeting & Awards
Join your BDAI community as the board presents the year's happenings as well as what’s to come. BDAI will provide dinner, and you can bring your favorite dessert to share - and vote for winner of all things sweet!
Conversaciones con el CoRe: Cuenta su Historia
Registrar aquí!
Tu Conexíon Educativa.El conocimiento es poder y la educación es la clave que desbloquea ese poder. Sanofi organiza un programa que puede resultarle útil mientras vive la vida con hemofilia.
Conversaciones con el CoRe: Cuente su historia La vida con hemofilia significa que a menudo tendrá que abogar por usted mismo ante médicos, empleadores, colegas, amigos y seres queridos. En este programa, hablaremos sobre cómo contar su historia y cómo crear mensajes personales significativos y convincentes.Alojada por:Jessie Pindilli Y Cathy Marquez-VelascoCoRe Manager (608)516-2131jessie.pindilli@sanofi.com
Dia: Friday, August 16, 2024
Tiempo: 06:30 PM - 08:30 PM CDT
Localizacíon:Fulton Market Kitchen 311 N Sangamon St Chicago, IL, 60607
Confirme su asistencia con su capítulo local.Space is limited! This program will be presented in Spanish.Confirme su asistencia a Lily en lschwartz@bdai.org con el número de su grupo. Este programa será presentado en español. Estacionamiento en garaje disponible una cuadra al este; inclúyalo en su confirmación de asistencia si necesita alojamiento especial en el estacionamiento.
A Bleeding Disorders Alliance Illinois & Sanofi Event
Registrar aquí!
Camp Warren Jyrch
Due to unforeseen circumstances, Camp Warren Jyrch is canceled for this year. Please visit bdai.org/camp to learn about other camp opportunities for this summer.
Vivir Con Un Trastorno de Sangrado: Conviértase en Su Mejor Defensor
Vivir Con Un Trastorno de Sangrado: Conviértase en Su Mejor Defensor
Unirse con nosotros para un programa sobre abogacía presentada por Martha Boria Negron de Novo Nordisk en conjunto con Bleeding Disorders Alliance Illinois. Vamos a hablar de 5 herramientas poderosas que le ayudaran a aprender la autodefensa, es decir, como identificar lo que necesita y como puede comunicar eficazmente esas necesidades a los demás.
